Jumps

This is Jonah, still three years old in this picture, jumping his bike at our local skate park.

As I'm sure you can tell from previous posts here and here, 

we are really proud of Jonah's love for riding.

I think one of the reasons he enjoys riding so much is because we don't push him...he enjoys figuring things out at his own pace and has fun playing with balance and momentum.

Shadow play...add a basket and we will have our own iconic ET moon rider.

Of course, bicycle advancements are not without consequence.
Most recently, Jonah dropped off an 18" rock wall (intentionally) and went over his handlebars (unintentionally) landing on his mouth.
He chipped three of his top front teeth and the one remaining intact is slowly turning gray.

I'm pondering the value of baby teeth at the moment and wondering whether a mouth guard or full face helmet might be beneficial for this little rider.

One in a Billion

Last week a renowned neurosurgeon said to me, 

"I have never told a parent that their child has as rare of an anomaly as I am telling you."

go on....

Ezra has a cleft in his spinal cord.  His spinal cord splits vertically and becomes two pieces of cord.

Diastematomyelia.

Our neurosurgeon told me that it is exceptionally rare because the cleft location is in his cervical spine.  And by rare, he means that there are EIGHT other individuals who have been identified as having a spinal cord cleft in the cervical spine....since the logging of medical records....in the world.

So I think that means that Ezra might literally be One in a Billion.

Way to go EZ!...

you continue to baffle every specialist,

challenge my threshold for heartache,

live every day happily and smiling,

and teach us that love is all you need.

I love you.