Monday, May 23, 2016

Ezra turns 2!


These days our baby is looking more and more like a little boy.
Ezra recently inherited this green walking aid from a family in Salem.  It's called a Babywalk, and it helps kids with mobility issues gain independence by having walking support.

Ezra has only had it about 1 month, but he is already enjoying being able to explore on his own terms.
I never thought I would be so delighted to have a little troublemaker!


Ezra's birthday party was held in a beautiful old gymnasium just blocks from our house.
Ezra loved the open floor space and wheeled around in all directions.


The older kids played basketball, soccer, tag, and practiced some rock climbing moves.


Balloons.  A party is simply more fun with balloons.


Jonah and his buddies: Anders, Bella, and Dylan
"Make a silly face"!
We had pizza, kale salad, and fruit.

Oh, and cake too!


Jonah didn't actually make the cake...he was more like the CEO of cake-making
and oversaw the whole process---including picking the icing colors.
(black, really?....thank goodness for bumblebees)


Happy Birthday!

The next photo cracks me up.  This is Ezra's "food face."  If you sneak something in his mouth, he always makes this face, regardless of flavor.  Always.


He was much happier playing with the cake.


Thank you to all our friends and family (near and far) who made this celebration special for Ezra.


Opening presents started on Saturday and continued through the rest of the weekend.  
It worked really well to space them out.  Ezra loved everything!

The best present of all was seeing Ezra so happy...and tired.  
Ezra and Jonah share a bedroom, and usually have different bedtimes, but after the party we put them both to bed at the same time and IT WORKED.  
So we now have a new routine for our big two year old.


Of course, the next day, we were off to the skate park to burn up more energy!  


Ezra seemed to be embracing his new status.


And just like that, our baby is two.
We love you Ezra!

Monday, May 16, 2016

Feeding


This image is not usually what comes to mind when you think about food.
For the past 23 months, Ezra has been getting the bulk of his calories directly pumped into his tummy via a feeding tube.


This is what "food" looks like to Ezra.  His current regimen is a combination of two blended foods (Nutren Junior and Liquid Hope), 1/4 tsp of salt, and probiotics.  I make one day's worth of food in the morning using a formula blender.


Once Ezra transitioned from baby formula to the junior food, I was really horrified reading the ingredients list.  This is a Nestle product, and just like any of the mainstream pediatric food supplements, it somehow manages to provide kids with the necessary calories and vitamins without seeming one bit nutritious.  
So I began looking for an alternative and discovered Liquid Hope.  


Liquid Hope is medical grade food and our insurance will pay for it, so after switching supply companies (a total nightmare) we were able to try it to see how Ezra would tolerate "real" food.
This particular formulation is intended for adults and we are finding it to be too high in fiber for Ezra....which is why he's consuming a combination of both types.  Our supply company will hopefully start stocking a newly available pediatric blend made by the same company called Nourish, and when they do, we will be trying that.

Parents have the option to make their own blenderized food for a tube-fed child and I have looked into doing that.  It's something that I plan to revisit later.  Currently, having a shelf-stable food option is really convenient with all of the travel we do for Ezra's appointments.  And because Ezra's gastrointestinal system is not like ours, I'm really terrified about the consequences of experimentation.


One of my primary jobs has been making sure that we have all the tools on hand to keep daily operations running smoothly...there's always the knowledge that the things which keep Ezra fed are not readily available---which means our bedroom and basement are stocked piled with supplies.
One of the most difficult adjustments (for me) has been dealing with a home full of medical hardware and products.  Now, almost 2 years later, I don't bristle at the sight of an IV pole being a permanent fixture in our kitchen.  I'm getting better.  Although, during my last morning jog, I kept hearing (in my imagination) the beep of Ezra's feeding pump.  I look forward to a future of sharing meals with my family without tubes, cartons, and alarms.  You can join me in continued prayers for that.
xoxo
  

Wednesday, May 4, 2016

Little Ladies


Yesterday evening was overcast, humid, and windless....a perfect time to release our little ladies.  Jonah placed 1500 ladybugs throughout our garden.

  
They really tickle!
We also picked our first ripe strawberry of the season!  Is it summer?
xoxo

Tuesday, April 19, 2016

New Laundry Room


Ta-da!  Here's our new laundry room!
This might not be very impressive, 
but for an impromptu renovation project, I am delighted with the outcome.


I was already loading pantry items into boxes when I thought I should probably take a "before" picture.  The main things I want to point out are the bats of exposed insulation and the flooring material which is nasty, stained carpet.  Why would anyone ever think carpet is a good idea in a laundry room?


Under the carpet we found linoleum tiles 
and a patchwork of underlayment material of varying heights.


 Here is the photo of the real problem.  The dark patch is waterlogged particle board.  This was caused when our washing machine began leaking water out the bottom.
And, by leaking, I really mean flooding.
The repair man said our problem was the most expensive kind.  And because of the way the washer was designed, it would be cheaper for us to buy a new one than fix our existing one.  It was only 5 years old and we were not happy about being in the market for a new machine.
Because of our very teeny tiny space, we have to use what is called a "laundry center" where the dryer and washer are stacked and actually connected for compactness.  So not only were we out a washer, but we were also getting rid of a perfectly functional dryer.


After removing all the underlayment, we dried out the sub floor with our space heater.
Jonah and I did all the demo up to this point...
including spending hours pulling out tacks and nail heads.  
It was at this point that I called in the expert.


Jonah and Richard began cutting out our new plywood underlayment.
Our house was built nearly 90 years ago and the porch (now enclosed) was part of the original design; every measurement highlighted the home's age.   Richard was very patient dealing with all the cuts as not a single corner was square.


Plywood floor installed.


The handymen.  Say, "FUN!"


We decided to finish the project we inherited from the previous homeowners and cover up the exposed insulation using beadboard.


Jonah helped paint the original coved siding....double-handed.


Our new washer/dryer unit was arriving soon, so I would work after kids were in bed between 9pm and 1am.  Once the painting was done, I installed the new vinyl flooring.
I chose a black and white checkered pattern which I bought in Portland at Linoleum City.  I think one of the worst blunders that homeowners make is using contemporary design in older homes.  It might look fresh and hip in the moment, but inevitably goes out of fashion.  I prefer to stick to simple, era-appropriate choices, so even if the style is not fashionable, the house stays true to its classic roots.


Like any project with an old house one thing leads to another....
This is the laundry room window view from outside.
I didn't know much about old windows, but I do now!  If you can look beyond the horrible paint job (another "who on earth..." moment) you can see that the glazing is almost completely gone.  The glazing is the putty that holds the panes into the window frame.  It seemed silly to me to have insulated and painted everything without also tackling this.


Inside view.  I got a quote for having someone else do the work and $160 seemed absurd.  So I went to the hardware store and spent $28 on glazing putty, glazing points, and a special glazing knife and did it myself.  There is a bit of a learning curve---so I can see how one could get a project done much quicker with someone experienced.  The glazing itself probably took me a little over 2 hours.  What really took a lot of time was stripping the windows (the lead paint test was negative), sanding and prepping the wood, replacing the bottom rail of the window (thank you Richard!), scraping old paint off the glass, and repainting.


I think it was worth it.


Since this is a picture window and doesn't open, I plan to install a permanent storm window so we get the R value of a double-paned window.
Why not just put in a new window?
Well, for starters, aesthetics.  Second, I believe the research (here, here, and here) which suggests that old windows are superior to modern products in many ways.  And finally, the greenest choice is using/refurbishing something that already exists.


Ready at last for installing the new laundry center.


The photo sequence makes the it look amazingly simple,
 but the reality was less magical...it was raining,
and we had to take the door off the hinges for it to fit,
a special gas line had to be ordered,
duct-work had to be customized,
utility sink reinstalled....
Another big thank you to Jesse and my Dad for this bit.


We learned a lot through this "little" project.
It did not occur to me that checkered flooring would be a nightmare to install in a room with no straight corners...until I was trying to do it.

After being burned by Sears and the Kenmore brand too many times, we broke the bank by splurging on a SpeedQueen machine.
It is made like a tank---425 pounds!  Longest industry warranty; built in the USA.
You see them mostly in commercial applications like laundromats.
Here's to many years of hassle-free laundry washing and drying!


I'm so happy to be done!
I love my new laundry room!!
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